Clinical Trial: Modified Delphi for Genomic Bereavement Care
Study Status: Active, not recruiting
Recruit Status: Active, not recruiting
Condition:
Fetal Anomaly
Bereavement
Genetic Disease
Study Type: Observational
Official Title: Developing Best Practice for Genomic Bereavement Care in Pregnancy Loss: A Modified Delphi Consensus Study.
Brief Summary:
It is estimated that 1 in 4 pregnancies end in loss, be these early miscarriages, ectopic pregnancies, or later intrauterine losses for any reason. Genomics is a major part of pregnancy loss, and clinicians want to offer the best and most appropriate test available to women and their families, whilst ensuring that there is equity in the access to this testing, so that no family goes through a loss without the right support and information. Whilst there is limited information to inform professionals as to how to…
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